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daviep7
August 28, 2009, 8:53pm Report to Moderator Report to Moderator

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Hi its me again . Just to let you know of other symptoms that iam getting at the moment
and wondered if anyone is getting the same.

Very dehydrated with the medication at night.

Extremely itchy skin,scalp dry,face inflamed,& dry.

Legs get weak,spasm,shaky,unable to standup,especially after walking too far.

Eyes sore,inflamed,& itchy,like hay fever.

Blood thinning,feeling cold,even though its August.

Cant grip very hard.

Cant seem to sleep without the light being on,afraid of the darkness.

Does this seem to be only me?
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Lou
August 30, 2009, 8:53am Report to Moderator Report to Moderator
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Hi Davie

You sound just like me!  My skin is terrible, so thin that it bleeds when I wash my face but I guess that it's from the use of steroids; i too have an extremely itchy scalp and my hair is thin and falling out.  I'm very weak on my legs at the moment and feel as if they are going to give out on me and as far as feeling cold goes, last night I had to borrow my husbands walking boot socks as my legs were like ice, however I also have severe night sweats (not the menopause, I'm too young for that!)

I'm new to this site but have found it very useful so far. I was only diagnosed in April, despite suffering terrible pains and diarrohea for the past 8 years, every since having my gall bladder removed.  I had an endoscopy and colonoscopy about 6 years and they couldn't find anything so I was told to basically get on with it and discharged, which is what I have done.  However by Christmas last year, I could hardly eat, severe pain, passing blood and was living on immodium to get me through the day (I have a full time job), so eventually went to my GP who was very sympathetic and couldn't understand why I hadn't been in sooner.  I then had the usual tests (endoscopy, colonoscopy, small bowel barium meal and CT scan) which confirmed quite severe Crohns and now awaiting an op.  I'm currently signed off work for a couple of months as I have terrible back pain in my sacroiliac joints and a possible abscess (CT & MRI next week).  All these symptons seem to be getting worse plus the new ones I develop every day!  Feel such a hypochondriac, sure people think I'm making it all up (I'm not, I promise), infact feel pretty low at the moment but I guess that's due to not working, which I have done for the past 23 years, feel very guilty.  Anyway, sorry for rabbiting on, just good to get it off my chest.

Hope your symptons sort themselves out - what medication are you on?

Kind regards
Lou
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daviep7
August 30, 2009, 11:23am Report to Moderator Report to Moderator

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H i Lou,i think we havnt got a lot going for us,lol.But i never complain or make a big issue about
it.I know what i have and the people around me are positive,which when your like this you need.
When you hear  folks complaining,they have had a bad night on the drink,or a cold,i smile and
think "you dont know what its like to have pain or suffer"... just try this for a few years.

Anyway,lovely to hear from you,and dont worry about shouting off about things,thats what its
all about on here....be good. Dave.
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crohnsproof
September 6, 2009, 8:52pm Report to Moderator Report to Moderator
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Hey Davie?
Hope your symptoms have improved since your last post.  Crohn's causes horrible fatigue, but some of your symptoms could be a direct result from your medications.  Have you talked with your physician about them?  
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daviep7
September 7, 2009, 6:48pm Report to Moderator Report to Moderator

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Welcome to the site crohnsproof,yes thanks,i do know all about it,have done my homework.

see my other messages.
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elle
September 11, 2009, 7:58pm Report to Moderator Report to Moderator
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hi, does anyone know if allergies such as hayfever etc is related to crohns? my partner has terrible sneezing fits where his eyes swell up and itch and can be like this all year someyimes he feels unwell with flu like symptoms.  He has recently been diagnosed with crohns and i wondered if his allergies are connected with it being an immune thing x
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chasa
September 11, 2009, 10:18pm Report to Moderator Report to Moderator
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hi elle inflamation of the eyes are one of the symptoms that most crohns sufferers have, mine seem to water a good bit as well, i also come down with flu like attacks through the year, have put this down to lowerd immune responces, check Davie7 post above

regards

chasa
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