Hi, everyone

I was wondering whether any of you could give me some feedback about losing the weight gained during the steroid treatment. I had a really bad flare-up last year which could not be controlled with the medication i usually took - mesalazine, pentasa etc. So i took prednisolon, 50mg a day, for about 2 months. It did not help at all, i experienced all the nasty side effects including the cushing syndrom and i gained almost overnight about 10 kg.

Now i am feeling much better thanks to Infliximab and Azathioprin. I started training again (i used to be very fit before i got sick again), almost every day and although my muscle tonus got better and my tummy looks flatter, my weight is still the same.

Has any of you had experience with life after prednisolon? how long does it take to lose the extra weight?

thanks a lot!

greetings from vienna

Ralu

Sorry hunni, i was on pred for 6 weeks put 7lbs on and unfortunatley 3 months later i still got it, i think its cause of the other meds im on now though which balsalazide which is doin something but not sure what lol, and colestyme sachets , they both can cause lots of side effects which effectsthe weight, so on a losing battle really hope you can get it sorted soon. xxxsuexxx

Hi

I would be very interested if anyone has any advice about this. I've put on approx 2 stone in 6 months after being on 40mg pred per day and budesonide.  I had really bad flare ups and was on a drip of steroids for 5 days (twice), on one occasion I put on a stone over those 5 days whilst in hospital!  I came off them a couple of months ago and expected the weight to drop off but it hasn't despite diet, exercise etc.  It is really getting me down to the point of not wanting to see people I haven't seen for a while.  The worst bit is that I visited the consultant this week and he has put me back on budesonide.  Any suggestions would be gratefully appreciated.

Thanks
From a fat fed up crohnie!

Hi, sue, thanks a lot for your reply. I guess you are right, hard to distinguish anymore among the side effects of all these med. hope you are doing well.

Lou, i totally understand how you feel. When i was totally swollen up in my face i also did not feel like seeing people, also thought that they will think i gained so much weight etc. I was at my doctor's last week for my iv treatment and also talked to him about my weight issue. He said he is aware of it and most of it is just water weight because of the steroid treatment. And that it will go away but it will take some time. So i feel a bit more hopeful that maybe sometime in the future i will be back to 'normal'.

it is hard enough to have a chronic disease, but the side effects of the meds make it much harder and are sometimes worse than the disease itself. At least that was my experience with the steroid treatment.

all the best,
ralu