I have crohns /colitis, have had right hemi-colectomy 2 yrs ago. Am having a flare right now. Have been on pred, am on asacol, antibiotics. Havent had a flareup for 6months, until now. I belong to the Crohns & Colitis Association, which I find very helpful. I have a great consultant, shame I cant say that about my GP, he seriously doesnt want to know and makes me feel Im making this up. I have been very well and enjoying good health. Then all of a sudden bang, and forget what it was like to be bad again, it does drag me down like the rest of us.
Keep your chin up hunni, drs r not trained in out area, that why we have gastros, my gp wasnt interested and she told me straight, she didnt understand tats why she sent me to see a gastro, i actually go and tell her what i want now lol. hope you get all your needs from your consultant, or ask to see another gp hunni, you have that right xxxsuexxx
Hi there, this is my first post and I'm not even sure if it will get read!..
Its good to know that people out there actually understand how this feels! I have been a Chron's sufferer from the age of 12, I am now 18.. it seems every year it gets worse!! I am now on clipper steriods, and have recently been told I need to think about having Iron injections.. scared is not the word I hate feeling like a burden to everyone especially my family, as they get deeply upset about my illness and it is not fair. thouht it would be good to VENT out on this!!
HI IM NEW TO THE SITE AND BEEN HAVING SO MUCH TROULE THE LAST 6 MONTHS WITH TERRIBLE SICKNESS AND STOMACH PAINS WHICH HAVE HOSPILISED ME EVERYTIME I HAVE BEEN DIAGNOSED FOR 10 MONTHS NOW ANY ADVICE
We all get fed up, and I spend more time on this site when I am fed up, than not. Tattyteds68 is right, even I go back to my docs (who are all very nice, but not that knowledgable on Crohn's) and tell them what I need after I've rung the IBD hotline, and am glad that I face no resistence which means if I need more meds I can get them straight away without waiting a fortnight for a letter to arrive from the hospital.
You do need to vent and my first entry was indeed a vent, so go ahead, we all now what a bummer it is, and how bad it makes us feel. I only confide in my husband, else I get fed up with being asked how I am each time I speak to my family, and I don't want my parents worrying about me all the time when there's nothing they can do o help, sometimes I fess up, but my Mum knows when I'm teling porky's! Besides if I don't tell him, it makes him mad and I get a telling off.
Love to you all, there's an awful lot of us in this boat, and I'm kinda glad really I'm not alone............
Do not alter or start any medications or other remedies without first consulting a medical professional. Remember that we are not medical professionals, but merely fellow sufferers offering the benefit of our collective experience.
The views expressed above are that of our users and do not necessarily represent those of crohns-disease.org.uk, please see our Terms of Use for further information.