That capsule endoscopy seems the route for me. Watched a test on youtube - that little camera is the business. I am never having a colonoscopy again - unless they bribe me or put me out. Nurofen are murderous.
I know I am slightly off thread but does anyone know how much it would cost for the capsule route privately?
Got my date for my next trip to the Consultants for my biopsy results, 6th April, makes a change from the usual 4 week wait, makes me wonder what they are going to say.
Yes, I the capsule is definitely the easiest of the tests. I found colonoscopy really painful even with sedation and pain relief. I suspect the capsule text will be expensive because of the time it takes to analyse all the footage. But, if I'd known about it, I would have paid to have it done just to get a definite diagnosis. I think it only records data from the mouth to the end of the ileium though....I think it's too murky in the large bowel for the camera to pick anything up. Let us know how it goes at your appt. Glad you don't have to wait too long for that at least. Gail xx
I didnt mind the Colonoscopy, but then again i dont remember much from it. I suppose they use them to rule out UC in the large bowel, seems like my lot have started at the bottom, pardon the pun and are working their way up.
Glad to hear that your finally going to get the results Ian whatever the news at least your making forward progress - I do hope it goes well for you. I have heard nowt from my test so I will get on to them next week.
That has to be the worst bit - knowing that you will be told something. The way I see it is whatever the diagnosis, something is wrong and needs to be addressed.
Who knows how these people come to their conclusions so don't be afraid to put them to task and explain how the diagnosis was arrived at and treatment options. They work for your benefit not the other way around. If only they realised that, the process would be so much easier irrespective of outcomes.
Just back from seeing the consultants, bloody useless they are. biopsies didnt show anything. They have given me Loperamide for the diarrhoea. Being sent for an Endoscopy, i did mention the capsule one but they wont do that until they have done the normal one. I feel so fed up and really low now.
Hi Ian, Sorry they couldn't give you anything more useful today. It's so frustrating having to wait for results. I know how you feel. I think they have a protocol of tests to go through and they can't deviate despite their clinical judgement or your needs - cheapest tests first! Are they doing the gastroscopy this time? Gail x
Yes they are and then it is back to the consultant in 6 weeks time. If nothing shows on the gastroscopy then they will send me for a capsule endoscopy.
Sorry to hear that you haven't had a useful result. This happened to me over 10 years until I paid to go private - the best £200 I ever spent. Basically this was for the initial consultation and then referred for various tests (CT scan, colonoscopy & barium small bowel plus a selection of blood tests, which included different tests than the normal full blood count), then back to the NHS. My colonoscopy never showed any evidence of crohns as it was in the small bowel and this couldn't be reached, however the CT and bloods indicated that something was wrong and suspected (96% sure) it was crohns. Then sent for a barium x ray which clearly showed it, never understood why I hadn't had it before. I was very relieved yet very angry when I got the results but after speaking to other crohnies, sounds like we all have a similar tale to tell. My boss paid for the capsule - think it was about £200 but it didn't show her crohns, hers came up on a CT scan only. I guess it depends where abouts it is. Best of luck with it all, try to keep smiling (in between toilet visits) Lou xx
I've been thro the same thing over the past 30 odd years but after my op in Jan, and the fact that the surgeon TOLD my husband and I that the biopsy showed crohn's, I thought i was home and dry. However today I got a copy of a letter that has been sent to my gp from the gastro doc, not the surgeon, at the hosp. It says that "biopsies were not diagnostic of crohn's disease as they had no granulomas" and the pathologist stated that "this is suggestive of quiescent IBD". Can anyone explain this to me please? I cannot get an appointment with my GP till nxt week, and although I have a barium meal booked for 29/4, my nxt appointment with the gastro doc is AUG 15TH!
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