Hi Scoop,
The Budesinide is a steroid which is released specifically in your intestine so it has less effect on your whole system. I haven't taken it but have read about others who had good response.
I manage to work full time okay and I think most people do once they're being treated but everyone is different. I think it takes a while to find the right meds that work for you so don't despair - you will get there in the end.
I've had two flares - one lasted three months (no treatment) and the next one came after a year of remission and lasted eight months (again not treated because I wasn't diagnosed). I think there's huge variation in how long flares and remissions last. But with treatment you should get the flares under control and other drugs can help you stay in remission. The hardest thing is waiting while you're poorly. Have you asked your doc about an elemental diet (liquid drink) to replace some meals...or maybe trying to stay on low fibre, low fat bland foods...might get your symptoms under control more quickly?
Hope you feel better soon,
Gail

Hi All
Thanks for all your advice, it is much appreciated. I am still taking Budesinide and it is still not having any affect. Since I stopped taking the Prednisolone I am back up to 7-12 times a day. is this normal? Does this mean that Budesinide is not working? Should I ask to go on a higher dose of prednisolone? (I was on 30mg for a week then down to 20mg for a week and so on).
Sorry for all the rapid fire questions but am desperate now. Any advice gladly received.
Thanks for reading.
Scoop

Hi all,
I have just been reading everyones messages regarding the steriods.  When I was first diagnosed with Crohns 13 years ago I was put on 150mg of Pred.  I was on this for well over a year(it did nothing apart from mess with my mind - in a bad way). I can not take any sort of steriod because of this.  But I have noticed that people are talking about 20-30mg of Pred, is this the norm now?
I am just curious.

Cheers

Neilfisk

Hi All
Phoned the doctors today as am still feeling no better and couldn't make it for an appointment. Asked to be put back on the Pred and asked for the dose to be increased only to be told to go back to 20mg for 2 weeks. I have booked an appointment for Monday and am going to plead with the doc to try a higher dose as i am still going 8+ times a day and am really sore. Did anyone else have problems with doctors prescribing high doses of pred? Will keep you all posted.
Thanks for all the replies and support, so glad I found this site.
Scoop