I would. I started on 40mg too and noticed smyptoms as you describe starting to come back around the 30 to 25mg time and am currently on 20mg. I haven't been sick yet but a few times i've had the 'excess saliva' in my mouth which if swallowed (and sometimes even if not) I vomit, thankfully i didn't those couple of times but the stomach pain, tiredness, anemia, rumbling etc are all coming back, though the tiredness etc i suppose never really went away and won't for a long time i'd imagine. I'm starting the Aza this week which is scary but needs must i suppose... It is very disheartening when just as you start to feel half normal (minus the pred side effects of acne and huge appetite-in my case a bonus as i could do with the weight) the crohns rears its ugly head again to remind us it hasn't gone away.
My consultant said he expected the symptoms to start returning at about this stage stepping down the pred hence starting the Aza. Definately ring them, what is there to lose? |