It's all coming back. Diagnosied about a month ago.  Started on pred. Pentasa and calcichew. The 1st at week of 40mg of pred everything was amazing, almost worked over night, skin tags almost vanished, cramps gone, only going to the loo  once a day, energy! and very minimal blood!! The same on 35mg, and i was silly to think this might work for a while. Now I'm down to 30mg, I'm getting worken up with cramps, the tiredness is setting in ( and at 26 I thought I might be able to achieve more than the washing up without needing a sleep!!) and I've started to notice I'm needing the loo more and more, I'd forgotten about those ones when u r desperate and then there is actually nothing... Which I had at 12:30 am 3am and 7am..... The joys!! I feel like this Is never going to end... I want my life back!! Is it possible to go on steriods Long term? ..... I know I'm only just at the start of finding something that works for me.... But I was silly and got my hopes up....... Xxxxo
The worst thing for me is my blotting... I hate being asked when I'm due.. I'm only little, and when I'm blotted I do look 6 months +. But it's soul distroying! Is there anything that can help this?? Xxx

Hi jemma, sorry you are having a bad time I know just how you feel.  I was diagnosed this time last year and put on Pentasa, no joy.  Went onto Entocordt and it was heaven all symptoms gone but same as you they came back as I tapered off.  I finished steriod treatment in Sept and then had a bowel obstruction in November, back on steriods, this time Prednisolone.  Again they were great while I was on a high dose, but all came back when I tapered down.  I am now on Pred and Methotrexate and am only ok while on the Pred.  I am now waiting to start on Remicade to see if that does the trick.  I am lucky I don't get too much bloating but when I do it is so painful and looks awful.  
Steroids long term - not really a good idea and I understand most docs will want you off asap.  But there are lots of other options for you to try and if you were only dignosed last month it is early days on the drug front.  The trouble is you have to be on each new drug for an amount of time to see if it is working or not, which can seem endless, especially if like me you are taking several and not sure which one is helping !  Have you tried drinking peppermint tea, I think it is foul, but it can help the digestion so may help you.  Hope you get some relief soon and feel like you are getting somewhere.