Anyone got any ideas ?  I was diagnosed this time last year after having symptoms for years.  I have been on Steriods more or less ever since and also take Methotrexate and am waiting to start Remicade (if PCT will fund).  For the least few weeks I have been getting pains mainly in my legs at night.  It starts with a sort of flu like ache and I can't get comfortable then the pain gets worse and I can't sleep.  I sometimes get aches inmy arms and wrists.  There is no swelling.  What I don't understand is that on the dose of Pred I am on at the moment the bowel probs are fairly reasonable (some days I can get one solid bm and not much pain !!!) so how come I am now getting joint pain.   Surely the Pred would stop the joint inflammation ?  I would welcome any thoughts.

Evening primrose - if you are able to take it alongside steroid, or glucosamine. I have osteopenia, and I ache all the time, especially just at the point you are done for the day, physically exhausted and want to sleep.

I use vaseline eculyptus/menthol body lotion, thats kinda nice if you can be bothered, its not a cure but is does make you feel nice.

Jo x

I had that, been diagnosed for 3 years and been on steriods on and off for 3 years anyway, I recently got diagnosed with Crohn's associated arthritis. I had the pains your describing, and then after awhile, it got to the point where I couldn't move, my knees and ankles were killing me. Went to a drop in centre and saw the most wonderful doctor, she said "Well if it hurts and you've got Crohn's, it must hurt a damn lot!" She made me feel like I wasn't a bit of a hypo! (went to Gp and he dismissed it as normal!) She gave me tabs which started a flare but referred me and ended up feeling better after starting Humira. My miracle drug! So I would tell the doc. It doesn't matter on age or anything as I'm only 20 and have it! I blame Pred for it as before that I had no problems what so ever!! Also, Ibrufen (can't spell) gel. Rub it on your knees or shins or where the pain is and it is lovely and makes them feel confertable enough to sleep. The pain isn't completely gone but hey hoe, with Crohn's/Colitis you get used to a bit of pain!

I get joint aching from the pred, as well as other side effects.  

A few weeks ago my left knee, which is already dodgy as I have supple joints and that's the worst one, just wouldn't support my weight, I had to wear a knee support for a few days while it settled.  

Also my right wrist aches, it's not carpal tunnel fortunately, but the muscle under my arm that connects to the thumb aches, which makes my wrist ache bad, and I have to type as part of my job.

Unfortunately the pain is one of the many things we have to get used to.