Hi there! I'm anna and i got diagnosed with crohn's disease a few weeks ago. I have loads of medication and am doing this feed treatment thing to make me better. It's really annoying especially at dinner time in school as i can't eat anything. I have to drink this modulin stuff for 8 weeks and not have anything else apart from boiled sweets and lemonade. I hope if anyone's got any advice about food, sport etc. to let me know. I want to get back to normal as soon as possible as this crohn's disease has ruined what could've been a pretty good summer.

Thanks

I`ve probabally had Crohns all my adult life (now 47) but my doctor wouldnt believe there was anything wrong with me !Just kept telling me it was normal to have loose stools all the time !
Two and a half years ago,i was rushed to Hospital, emergergency operation,and 16" of bowel removed !
4 nights in IC.another 12 on the ward,15 days no food,7 days without a wash,3 1/2 stone lost, 4 months of work (i`am S/E) an YES it was Crohns all along.
Am i back to normal now ? The Crohns yes,B12 every 3 months,folic acid every day,and one sachet of Questran.
If i sound bitter,it`s because when in Hospital i "somehow" contracted Brachial plexus nueritus,and thats why i was off work for so long !
Its still with me,but nerve damage takes forever to mend,and being a builder my hands are my living.
Doctors ? no thanks

Hi Beefcake, sounds like you've had a terrible time. Crohns, normal, not sure they can be used in the same sentence. I think you stop being normal ever again. Sorry fed up of it today, just one of those days. I read all the messages on here and my heart goes out to everbody. I have had this for 16 years and think compared to a lot of people I am lucky (if you can be ), but I still get very down with it, so when I read the things that you and others have been through, well I so feel for you. Good luck and take care x

Hi there, I have just joined today after having it confirmed that I have crohn's (even though i've been convinced for a few months anyway!)

They have told me I am going to be taking Pentasa - just waiting to get them as had to give in my prescription to the GP today.

Has anyone used them and if so do they have any views on them? I've heard a lot of negatives about Pentasa!

My bowel movements are'nt even the worse thing for me (but still bad!)...I am in agony most of the time, stomach cramps and back pain...apparantly caused by such a large swelling at one part of my colon. Great!

Any advice would be great, I just hope Pentasa does the job for me...cos i've already had enough!!

Kels x

Hi Kelsey, I'm so sorry you have just received this news. I have been taking Pentasa for 16 years ever since I was diagnosed, and on the whole find them very good. I hope you don't worry too much about this medication as stress really makes crohns worse. I have learnt from this forum that different medicines suit different people, so give your Pentasa ago and If you feel they are not working for you, see your doctor and ask him to change them.
I really hope you find them to be as helpful as I do. All the best x

Thank you, its nice to hear from people who successfully take it! i'll see how it goes, im not expecting miracles and know it might take a while to kick in I just hope I feel a bit better for christmas!!!!

Kelsea x