Hi everyone,
Just to give you all an update. I went in for my colonoscopy and they perforated the bowel whilst doing it. I was sent to theatre for an emergancy op to repear the perforation. They decided as the colonoscopy had shown a stricture and crohns riddled area around the terminal ileum and so they did a resection. They took away the diseased part plus the appendix plus the ceacum valve. I am a week post op and must admit - still in shock. I have a horrible wound from about an inch above my tummy button , all the way down. On the plus side i can eat anything without any pain. I am scared though that this will be short lived and after all this i will become poorly again soon. I know this seems negative but i feel i have lost all my confidence and hope. Your words of wisdom would be grateful , thanks, Suz x

Hi Suz

I've been wondering how you got on, so sorry to hear you've been through all this, what a nightmare for you.

Hopefully that's it all sorted now and you'll be OK.  Sometimes emergency ops are better as you don't have to decide whether to have it or not.

I was told that most people have 5 - 10 years sympton free after a resection so hope you stay well for a long time.

Take Care
Suze x

Are you having your blood checked regulary ?
When i had my resection,they found i couldnt absorb B12 !
Now on 3 monthly injections,(at least they are free)

Hi, my name is Gemma, I am 26 years old, have recently given birth to my 2nd son and I am also new to crohns, infact just had it confirmed today!
I started showing signs at the beginning of the year, high white blood cell count and blood when passing stoles, but as I had just found I was pregnant it was just passed off as being down to the pregnancy. Then when I was 30 weeks pregnant I developed an anal fissure and sores on my body and my mouth, again passed off as being down to pregnancy. The fissure has never healed and I was in hospital last Friday to undergo L.I.S surgery to help heal the fissure when the surgeon who was going to perform the operation saw something that made him suspect Crohn's.
I am quite disappointed with the way I have been treated and have since decided to go private than through the NHS as all I have been told is that yes I have Crohns but no healthcare professional has actually explained to me what Crohn's is and everything I know I only know because I have searched online.
I am very down and depressed at the moment as I now have 2 fissures and can barely walk. My husband has had to go on the sick from work so he can help to look after our 2 sons, Elliott 2 years old and Declan 2 months old

Hi, my name is Gemma, I am 26 years old, have recently given birth to my 2nd son and I am also new to crohns, infact just had it confirmed today!
I started showing signs at the beginning of the year, high white blood cell count and blood when passing stoles, but as I had just found I was pregnant it was just passed off as being down to the pregnancy. Then when I was 30 weeks pregnant I developed an anal fissure and sores on my body and my mouth, again passed off as being down to pregnancy. The fissure has never healed and I was in hospital last Friday to undergo L.I.S surgery to help heal the fissure when the surgeon who was going to perform the operation saw something that made him suspect Crohn's.
I am quite disappointed with the way I have been treated and have since decided to go private than through the NHS as all I have been told is that yes I have Crohns but no healthcare professional has actually explained to me what Crohn's is and everything I know I only know because I have searched online.
I am very down and depressed at the moment as I now have 2 fissures and can barely walk. My husband has had to go on the sick from work so he can help to look after our 2 sons, Elliott 2 years old and Declan 2 months old

Hi Gemma, I'm so sorry to hear you are so down, when this is supposed to be a happy time of year. I was 28 when I was diagnosed, I too found out (on my birthday) after I had my daughter (caesarian section).  I have always thought thats how I got mine because I got an infection after.Just like you nobody told me what Crohns was, and I feel I am still learning more and more as I go along. I am now 44 and have been under the NHS all that time, I have had good and bad consultants but I don't think I've ever been satisfied with any of them, I always feel fobbed off. So I just want to say whatever you decide don't let them ignore you. All the best x

Quoted from Oldbird

Hi Gemma, I'm so sorry to hear you are so down, when this is supposed to be a happy time of year. I was 28 when I was diagnosed, I too found out (on my birthday) after I had my daughter (caesarian section).  I have always thought thats how I got mine because I got an infection after.Just like you nobody told me what Crohns was, and I feel I am still learning more and more as I go along. I am now 44 and have been under the NHS all that time, I have had good and bad consultants but I don't think I've ever been satisfied with any of them, I always feel fobbed off. So I just want to say whatever you decide don't let them ignore you. All the best x

Thank you for your response. I think the main reason I am so down is due to the pain of the fissures. I feel if they would just heal (after 5 months its hard to believe they ever will!) then I could get back to my old self and start enjoying life more. I just never saw this coming as I am generally such an active person.
The holiday season is my favourite time of year, but I am just not enjoying it this year, being unable to walk I can't get out to do one of my favourite things - shopping! So having to do everything online and watching my husband doing everything with the children is breaking my heart. I know one day I will get better just wish I knew when!

Thanks Suze and Beefcake for your replies. i have been refered to a dr at another hospital who is a crohns specialist and has an interest in research etc.I am hoping that he will answer my many questions and boost my optomism plus check bloods etc. I do feel however that it is this website that has given me more info than the medics so far! Will keep u infomed xxxx