Hello fellow crohnies,

I was wondering if there is any Scottish crohnies who can recomend a hospital to me.  I was taken into my local hospital who have more or less washed their hands off me. I was taken in for blood loss over the last 4 weeks and severe pain in my stomach and they have told me its all in my head and I should see a psycoligist. But they hooked me up with morphine injections.... They then told me to go home.  So, I am looking to get referred to another hospital. Can anyone tell me if they go to any decent hospitals and get treated like a human being and NOT like DIRT!!!

Any help here would be great

Cheers

Were you sent to the hospital by your GP? If not, it might be worth going to them and see if they'll refer you for further tests. Sorry can't offer more advice as I'm fairly new to all this. After for months of mixed opinions and antibiotics I asked friends who was the best GP to see and she arranged an ultrasound which has set the diagnosis ball rolling for me.

I am at Aberdeen royal infirmary and they have been fantastic Mr McKinley, Mr Smith and the IBD nurses Jenny and  Moira are very attentive in fact all the gastros are great there is also Dr Thompson and Dr Fraser. I dont know hiow you could be referred to them but it depends where you stay. I have been very ill for the last 3 months and they have been in constant touch with me on a near weekly basis, very attentive and bending over backwards to get me back on  an even keel, unfortunately I am now heading down the surgery route but its not for want of the gastros trying. Surely your doc has seen the blood if not take a photo with your phone if they havent. Have you had any tests eg bloods, scans colonoscopy or sigmoidoscopy. I have crohns and it can take many months or even years to get the diagnoses right. good luck

Hey karen, havnt been on this for a while. ARI is the hospital I go to. I do not the docs you have said but another, I was in a few weeks back where they told me my crohns is active again but will not do/can not do anything as I have tried everyting and nothing works. I have also had 2 big op's, I stuck in the middle here and its doing my head in!! This is why I thought I would ask fellow crohns people.

Cheers

You go to Aberdeen not Inverness? I am being referred to Raigmore for surgery. Not heard many good things about it

Hey Grumbletum,

After I got diagnosed, in Raigmore, they told me there was nothing more they could do for me as its 'in my head'!! So we kinda fell out because of that and they refuse to treat me!! I have been turned away so many times even though I live in Inverness.  I always get told that I should seek advice from ARI. I have had 2 major op's in ARI and they are great but I think with all these cuts and I don't live in NHS Grampian region, I am not getting the treatment as before. This is why I am thinking of going elsewhere, I have been of work now for the last 2 years due to a continued flare up and nothing controls it or even calms it down. Really frustrating.
Who are you under in Raigmore?

Cheers

Hi Meilfisk
I currently get treated in Stornoway but get referred to Raigmore for various tests, my last one was a radionucleoid scan a few months ago.  They have always been very good to me.  Was staying on mainland for a while a few years ago and was taken into Raigmore as a patient as I was having a lot of problems, i had been diagnosed with Crohns a few years before that but it always had a question mark over it, so was finally properly diagnosed by them there. Was under Zentler-Munro brilliant gastro man in my opoinion.  If he is still there I would strongly advise you asking to see him.  Its a Dr Acher I see in Stornoway don't know if he goes to Raigmore too.  Hope that helps.  Sorry you are having so much bother it can be very frustrating.

Yea. it's Dr Achar I see too. Don' t know who I am seeing at Raigmore yet, just waiting for the appointment in Inverness. I would like to deck these clowns that tell you you are imagining things. It was 8 months before I got my diagnosis. One GP at the local surgery told me I  'wasn't giving him enough clues' as to what was wrong with me ( pain, vomiting, UTis, weight loss....... ) and wrote me a prescription for 100 paracetamols.

Hey Fi, soory but have to disagree with you there about Zentler!! The man is an idiot, in my opoinion. That is the reason i went elsewhere and now they wont treat me, even tho they treat my dad and my brother with no problems!!

Grumble, totally agree with you there. I am getting fed up of GP/GI's telling me its in my head. Its my body and I know when Im having a flare and how bad the pain is but just seems to go in deaf ears!! Hope you get on well in Raigmore, as long as its not Mr Potts!!!

Cheers

hi meilfisk
Sorry you had problems with Zentler, he was a godsend to me and is the only gastro man I have seen who took the time out to observe me before during and after a flare up, kept me in hospital for a couple of weeks to bring my condition under control so that he could observe how my body reacted to foods and meds.  I was 25 at the time although had had problems since my late teens.
I don't understand how they can refuse to treat you, what does your GP say about your condition?
I was only diagnosed after being referred to a rheumotologist, they thought at first that I had leukemia due to the abnormalities in my white blood cells, finally after years was told that I had AS and Crohns, was given a radio-neucloid scan which showed up all the inflammation in my body. For me it was the pains in my joints that had consultants telling me it was all in my head and I was attention seeking, but I just persevered until i got a diagnosis did take years though.
Sorry you are going through such a hard time, the stress must just be adding to your problems. You could maybe find out if Dr Achar works in Raigmore, the Stornoway consultants are often working in both hospitals.
Hope you get some help soon.

Saw Dr Achar today. I've been having trouble with one ( possibly two ) enterovesical fistulas but antibiotics seem to be helping heal them and I think the Aza might be kicking in, cos I've been feeling better than I have in ages. Have probably just tempted fate by saying that!!
He thinks I will still need the surgery however and that it's likely to be a resection. The surgeon he's referring me to is a Dr Docherty. Anyone had any dealings with him/her?

P.S. A him! Just Googled.

Oo-er! Off to Raigmore on Wednesday for inpatient assessment. Naive me thought it would be a wee chat with the surgeon. Admission for 1 -3 days, depending on what tests they have to do. I am so chicken about hospitals, I am bricking it

Hey, hope it all goes well for you in Raigmore!! Keep your chin up

Thanks I've had another CT scan and the surgeon, Mr D thinks my fistula has healed and that I should try Infliximab rather than surgery at the mo. So have to wait til Monday to see Mr Potts (!) to discuss the next steps with him.

Well after suffering severe symptoms over the weekend I contacted my GI(ARI) and he told me to go down to my local hospital. I did this, went to A&E, they took some blood, told me it sound like Im having a bad flare up and sent me home. I then went to my GP today who called the so called GI consultant, who after hearing my name said they were not willing to help and that I should conact my GI in the other hospital!!! They are a complete JOKE!!!! I am in so much pain and the toilet trips are really starting to hurt!!
Rant over