Hey everybody.. Thought i would post my story and see if any1 can help/advise me pls.. My story starts with another illness, Endometriosis, i was awaiting my 2nd operation to have the built up endo removed, i had come off all my medication due to the op I needed, so i was feeling very ill and my body was under alot of stress. I developed awfully painful tummy cramps with chronic diarrhoea, at 1st my gp said 'gastric bug' & sent me home, that evening I was still getting the awful stomach cramps but had stopped passing any form of a stool it was replaced with a gush of liquid that was blood red and then blood would just drip out of me (from my bottom i must add' sorry) this happened every half hour through that night. I was very scared. The next day was a Saturday, i felt dreadful so my family suggested i call out of hours, i was seen by the on duty GP who said maybe i had endo on the bowel, or a gastric bug, or due to coming off the 'endo' medications it had sent my bowels haywire, so he sent me home, with nothing but a 'see how u go' that day and night i was exactly the same - every half hour a gush of dark red liquid that had started to turn frothy, dripping blood, pains etc. I suffered all the Sunday too, exactly the same, come the Monday, which was a bank holiday i couldn’t take anymore, i felt so weak, my family took me to OOH once again, this time the on duty GP decided to take action, thank goodness, my bloods showed high inflammation, dehydration etc, & id lost nearly half a stone in a week too. She decided to book me in for an urgent colonoscopy, i had to do bowel prep, why i don’t know as anything i ate (not that i was) was going straight through me, but 48hrs later i had the procedure done. On diagnosis afterwards they told me they suspected Crohns but they were awaiting the results of the 24 biopsy’s i had taken OUCH, i was given Pentasa to start and went back 10 days later to see them in clinic, where it was confirmed i did have Crohns (September 2011) i felt absolutely gutted.. Not only did i have endometriosis which in itself was destroying me, i now have this aswell. There is No connection between the two illnesses just unfortunate i now had another autoimmune disease to deal with. I had my operation for the endo booked in for October so the team had to get me 'under control' quickly as my endo specialist didn’t want to operate with me being so poorly. so, I was given prednisolone aswell as the Pentasa, which after about 2 weeks things did start to calm down, which was great, i did have to beg my GP to get me off the steroids though, they made me feel dreadful. Just to say i was currently off sick with the endo and had been since august, sometimes i probably could have returned to work but then the Crohns appeared which added to my illnesses.. So here i am now, fully recovered from my 'Endo' op, that’s all been removed and hopefully wont grow back, i should now have my life back after 2 years struggling with that, but oh no’ im now struggling with this awful Crohns, i swapped one chronic condition for another.. Im currently still suffering with my Crohns - about a month ago, 2 weeks after my op something came back - i get very painful wind that pops around in my tummy, it hurts going all the way around my insides, when its finally ready to come out it brings out lots of mucus with it, which is like jelly & lots of blood with it, almost like an explosion. It tends to wake me at 4/5am every day, it does calm down around midday, but then im left with a sour feeling in my belly and sometimes it just helps to sit on the loo and let it all drip out, i have no appetite, i haven’t lost anymore weight though /? BUT the worse part of all this is sometimes that 'wind and mess that needs to come out' i cant always make it to the toilet in time Im 31 years old, a single girl, its very traumatic and extremely upsetting for me L I’ve been in constant contact with my GI nurse, they’ve done all my blood tests, repeating them fortnightly & i show no high inflammatory markers so they don’t think im having a 'flare up' but they have brought my appointment forward to see the specialist - this Wednesday 30.11.11 Does anybody else suffer with this in conjunction with Crohns? It doesn’t seem a standard symptom, im so confused... Hopefully they can sort me out on Wednesday. Im due to go back to work this Monday, am dreading it, i just hope n prey i can make it to the toilet in time Thank you for reading my story, any ideas would be greatly received.. Dawn x
hi dawn, i have just read your story on here i have had crohn's disease for 12 years and i have had similar symptoms to you as well with crohn's you will get a lot of pain and wind and blood at times this is more common when you get flare ups when you are ill and you also get diarrhoea and it can also effect your appetite as well, with crohn's it can effect any part of your body from your mouth to your rectum it usually effects your bowels and parts of your stomach and yes i have to rush to the toilet as well, hope fully your specialist will help you next week you do well to go to work i myself have had to retire from work because of severe illness, if you need any more help or advice feel free to get in touch i am allways on this crohn's forum most evenings i hope you feel better soon all the best from john.
Hi John Thanks so much for your reply, its very reasurring to hear all that im suffering with at the moment DOES have something to do with Crohns, i couldnt cope with something else right now.. Yep am going to try and get back to work, i feel so tired all the time so am only doing 4 hour shifts for now, ive developed mouth sores for the 1st time ever aswell, only 2day they have come up & they're getting sorer as they day is going on, i expect that is a Crohns thing too? Sorry to hear you have had to retire from work. My boss has suggested we go and see occupational health as they are concerned how this will inpact on my job, bit concerned, but from thier point of view, this year i have been absent more than there, 1st the endometriosis and now this?? EEEKK!!
hi dawn, yes the tiredness and the mouth sores are to do with crohn's disease they are very common in this illness i myself suffer with tiredness more so when i get flare ups i also get severe pain in my stomach which is only helped when i take morphine nothing else will touch it when this happens i am usually in hospital, this past two weeks i have been unwell not eating much and at the moment i am just having complan which is very good to have when you are not well and you have no appetite i recomend it highly, all the best from john.
Hi Dawn, I would agree with everything that John has said. My heart goes out to you both - John, you seem to have had a particularly bad time of it. There is hope though.
I have had spells of very bad flare ups, with symptoms similar to those you describe, but in between these I've also had long periods of being able to work normally. I even managed to hold down a job that involved a lot of international travel for the best part of 9 years, although I've chosen to give that up now. My own experience was that the first few months of Crohn's were the worst by far, not just because of the symptoms but because it takes a while to get to the root of the problem which I found very distressing, to put it mildly. Bear in mind that Crohn's can manifest itself very differently in different people, so it does take a little while for the experts to work out exactly what and where the issue is, and in your case this is no doubt complicated by the endometriosis. Once they have pinpointed the problem (and I would be very confident that they will) there are lots of different treatments available and these can be very effective. (John, I know saying this must seem insensitive for which I apologise, you do seem to have been especially unlucky).
As far as work is concerned, I would do everything you can to keep hold of your job for the time being, as there really is a good chance of getting the Crohn's under some degree of control. In my case it took surgery to remove a stricture (which gave instant relief), followed by managing my bowel movements through careful diet and loperamide. Admittedly, I'm now waiting for my third operation, but three operations in 25 years or so isn't too bad when you think about it, there have been long periods of "control" in between.
Hang on in there, hopefully you'll get some positive news on Wednesday, but if not just keep on at them until you do. Good luck, and all the best, Mike.
Just read all the posts, as you see you are not alone, one way or another this condition effects us and does so differently. What maybe one persons medicine maybe another's poison and it goes the same with this, it is just a case of trial and error. Given the endo I would of thought this may have masked the Crohn's in the first place and I can't believe your G.P just dismissed you and didn't send you to A & E immediately.
I was lead to believe that the Endo was said to be a weakness in the immune system but could have triggered the Crohn's but Crohn's is an over active immune system a bit baffled there.... What treatment are you on? I get the wind factor, like you it is so painful and I can feel it moving round my body like some bloody alien then the jelly and get really bad abdominal pain. I've found peppermint/mint tea helps with easing the wind factor and it's natural, I drink four ton of that, or there are peppermint capsules that should do the same. There are a number of symptoms with this condition fatigue, pain, mouth ulcers, loss of appetite the list goes on, then there's the side effects of the med's, it's a bit of a mine field. I use to find that my hormones could effect my Crohn's (and other conditions) how does that fare with you now?
Thanks so much for all the replys, thought i would reply individually to you all as i have lots of questions lol
To John - Thank you' its so nice to hear what im suffering is all connected. It really does sound like you suffer terribly with it, i was wondering what medication you take daily for it all? I have morphine at home for the pains i suffer with endometriosis, its horrible, one day on that and im wiped out for like 3 days! Luckilly i dont have to take it for the crohns, just codiene, this seems to be sufficent. Also do u get the complan on perscription, and does your GI team suggest you take these, am assuming by coming off food it gives the bowel a rest' therefore a chance to heal? great for when you cant face food too
To Mike - Thanks so much for replying to me, again its so nice to read the symptoms i experience are related to the crohns. And reasurring to read you have managed to hold down your jobs, i guess in all our cases were all so different, but hopefully i can too. Im quite lucky because i work in a Pharmacy and were are all medically trained, my boss being a pharmacist fully understands my problems but from a works point of view they need to know how this will effect me long term, but they also know i cant give them that answer yet, hopefully its just that at the moment, only 2 months in' they need to tweak my medications to settle things down.. With crohns my understanding is it can effect anywhere from your throat to your anus, i was wondering if 'depending on where the person is affected' will it make a difference to how you suffer? and can the effected area change at any time, so for example one flare up mayb throat/osauphus related, the next colon related, bit confused there?! And what is a stricture? and how does this make you feel? terrible id imagine, but do i need to look out for this? Sorry to read you've had to have operations to help with things, i suppose when u look at the 3 over 25 years its not to bad, still not nice though
To Kathrine - Thanks so much for replying, once again its been a great help to read im not alone with all this.. Yes when i looked back now it is very shocking to think the GP's just kept sending me away, but at the time i had a lot going on and noone would have thought i would have been unlucky enough to have another 'new' problem going on, how wrong they were though.. Endo & Crohns both have simular traights, my body should be attacking the things they create within my body but its dosnt seem to, i think my body was under so much stress coming off of the medictations that helped keep the endo at bay i then suffered with the crohns, ive been told it can be stress related? not caused by stress as such but if my body was under so much then it wouldnt have been able to fight it? does that makes sense? also ive not noticed any link with the crohns to my hormones, and they have been immensly up n down due to the endo aswell, so im sure if mine was going to be trigged by any sort of hormone it would have by now :/ It just seems flat rate unsettled all the time.. I love the descriptive 'some bloody alien' thats so right haha, it starts under my rib cage and goes all the way round and down, it bloody kills!! lol since getting this i brought some peppermint tea, and yeh it does help, i just really dislike it, i might ask my GI nurse for peppermint capsules? Currently im only taking Pentasa, 2g twice daily. They have suggested i change to Aziathoprine, but working in a pharmacy i perform medicine reviews on patients, some are on this and they express how bad the side effects are, but on the good side there crohns is much more settled, in which case i suppose i need to weigh up which one would be worse, and id have to go in to hospuital weekly for a blood test, id have to take time off work once a week to do this too, so im not sure what to do? Are any of you on Aziathoprine? If not what do you take, and does it help?
Thanks again everyone Dawn x PS sorry for any bad spelling :/
hi dawn, yes i do suffer badly with crohn's regarding the drugs i take at the moment i am on a drug called azathioprine i take four 50mg tabs a day which is a fairly high dose i also take a drug called mesalazine i take six 400mg tabs a day i also take a drug called nexium but this is more so for acid reflux disease which i also have, regarding azathioprine i have been taking this drug for over 10 years and it is a very good drug for crohn's there are side effects with it but i would not worry to much about that i have been ok on it and it has kept me well for a long time, about complan i get mine from boots and not on prescription but you can get a drink called fortisip from your gp this is also very good to have i have also been on this in fact i should go and see my gp next week to get some myself as complan is a bit expensive to buy, with azathioprine you will need a weekly blood test as i have to have one every week it is because it is a very powerfull drug and you need to be monitored while you are on it but as i say i would not worry about it because it is a very good drug to have, i hope this advise helps you all the best from john.
I've been on Ascol (mesalazine) Sulphasalazine, indometacin, naproxin (which you should never take if you have Crohn's) diclofenac, Prednisolone, Depo-Medrone, Amitriptyline, Humira (Anti-TNF treatment) was on Azathioprine (it did help a little) but came off that to go on Methotrexate. That's not including what pain killers and the med's to counter act the side effects they have prescribed..... But I have also Ankylosing Spondylitis, Fibromyalgia, Secondary Arthritis, Iritis (not confirmed) Depression and a dose of OCD for good measure. The Aza did improve my Crohn's Colitis as I originally had it in the stomach/upper and lower now it is only in the lower upper and the upper lower (right in the middle) but because I suffer with Fibromyalgia I think it was kicking off my Fibromyalgia (unfortunately not alot of the medical professionals believe in this condition). I also take Omeprazole 40mg (acid reflux, pharmacist told me gentler on the stomach) and Metoclopramide 10mg x 3 a day(anti sickness) Diazepam 10/15mg (pain relief as I can not take any opiate based pain killers) and the Methotrexate not long been on 10mg each week in increasing doses and as it strips your body of folic acid 10mg that a week to. Not getting on too well with this at the mo don't know if I have a virus or it's a side effect from the new drug.....
Don't worry about the Aza alot of peep's have had good responses, at first they will monitor your bloods as long as your system copes ok with it then they will keep you on a regular dose, they may start you on a low dose pending on your weight and then increase..... as you know this will effect your immune system.... good luck and stay positive I know how hard it is but just keep it logical and real and be honest and you can't go wrong....
Mike sorry to sound a bit blunt but you really shouldn't be taking the Loperamide, I was advised by my Pharmacist as I'd been bad with either this virus or new med's as I'm loosing weight as well he did mention it to me and then said "oh no you shouldn't have it because of the Crohn's Colitis" so please speak to your pharmacist and see what he says I hate to think you were doing yourself any damage.... Or you can tell me to bog off!!!!
Hey, thanks for repying once again.. Thats of great reasurrance to hear the Aza has helped you both and not made you feel that ill (side effect wise) I work in a pharmacy and we have a few patients on it, they gave mixed feelings really :/ Both of my pharmacist managers thinks i should give it a try, it may just be the drug that can work for me.. A downside to working in a pharmacy is that i deal with people who are ill on two different levels, some that are no threat to me and others who have alsorts of viruses, i do fear taking the aza, the fact that it weakens the immune system even more, i worry i will constantly catch all the bugs :/ Dont think either my pharmacists or the specialist will be ablt to determine if that will happen or not.. I see the specialist this wednesday so i suppose i will just have to see what she says.. Mike - i have also been told not to take loperimide, i use codiene quite alot for pain control, they werent that happy with me taking that either but it works for me so they are allowing it.. So please do check that out like Katherine suggests.. Katherine - Poor you having to take all that medication, all beit over time but alot of that is not nice stuff and how awful you have to struggle with the other conditions too, that must be a nightmare for you! I havnt developed acid refulx yet, is that something im likely too? Omeprazole is very good for that! Ive been told by the GI nurse that im not to take NSAID's now, from my training i assume its cos they effect the lining of the stomach ? I also wanted to ask, how will i know that im having a 'flare up?' i know its probably going to be obvious, but will it be the same symptons that dianosed this in me? I know right now what im experiencing seems to be a knock on effect from having Crohns rather than a flare, but these are bad enough, dread to think how bad a 'flare up' is going to be? So just wondering how you do its the real deal, if you get me? Dawn x
I see you are taking Codeine, I cannot tolerate any opiate based drug because of its constipating effect which makes my Crohn's even worse so you may want to try Targnact it's gentler on the stomach and does not clog you up....
Yes NSAID's have an impact on your stomach lining and because I was on co-codamol/codeine and also trammadol it took them longer to diagnose the Crohn's Colitis as it masked it for me......
As for flare up: tiredness, fatigue, abdominal pain, loose bowel movements and lots of them, mucus/jelly substance, blood........ I think that's enough to be going on with lol
Oh and one of my biggest bits of advice is to befriend your pharmacist as they have a better idea of what you are putting into your body and what it will do than any G.P or Consultant.....
haha, thats good advice, my pharmacist happens to be my boss too, and my friend so yeah each time i have it suggested to me to 'try this or try that' i phone him up and say whats this or should i take this blabla! Its brilliant! i also have my own BNF which is like a medicine bible, so i also read up on anything i take.. Luckilly i no longer have to use the codiene, it was for the endometriosis, since the operation ive been pain free so thankfully i no longer need to take them, for pains associated to my Crohns paracetamol tends to work, as does a hot water bottel, hopefully it will stay that way, fingers crossed.. The symptons you descibe for a 'flare up' are exactly what im getting now, and have been for the last 2 weeks, im so tired, i had to go back to bed numerous times over the weekend, lots of loose bowel movements, i get that wind i described and with that comes blood/jelly/mucus but cos my inflammatory markers werent raised they said its not a 'flare up' :/ Im going back to work today for the 1st time since being diagnosed with this, im only doing 4 hour shifts this week, but im feeling really anxious, ive been in constant contact and brutally honest with them about my situation, so they fully understand my problems, but i fear i 'wont make the toilet in time' arghhh, im so worried! But i have to give it ago or this diease will beat me x
Are you any med's for the Crohn's? Sometimes the med's can say one thing and your body tells you something different and some med's take 3/6 months to get into your system and work!!! I was told if I showed any of the symptoms that I described it was a flare up and to go to A & E. Don't panic, I see you go and see your GI on the 30/11 so tell them everything, write things down as you go along. Also speak to your boss as he'll have a better idea..... and good luck with returning to work.....
From one single chick to another I do understand where your coming from it's not the most pleasantest condition to have..... I have had my fare share of men run a mile once I told them what I got but I really hope it's not the same for you.... my philosophy is be realistic, logical and totally honest!
Hi again. Interested to read your comments about loperamide. I've actually just stopped this prior to my surgery, but prior to that have been taking it daily for 10 years - it has been very effective at controlling the diarrhea. This was prescribed by my GP and I've checked it with my consultant on a number of occasions - it's interesting how we have got such different advice. I'll be seing my consultant when I go in for the surgery next week so I'll ask him again and let you know what he says.
Dawn - in answer to your questions, where it effects you does have an effect on the symptoms you suffer from. Not sure how much you've found out about how your insides work yet, but this site is a really good source of information: www.crohnsandcolitis.org.uk - they have a number of leaflets you can request or download.
In my case, I am effected in the "terminal ileum" - which is the last bit of the small intestine before it joins the large intestine. A "stricture" is a tightening or closing of the bowel, i.e. a narrow section which stops food passing through. Just upstream of that I have a "dilated" section - which basically just means it stretched or expanded. So what happens with me is that I eat, food is digested in my stomach as normal and passes through the ileum until it reaches the stricture (i.e. blockage). Because it can't get through quickly enough it backs up and fills the dilated (i.e. stretched) section - a bit like a drain blocking up and then running away slowly. Eventually the pressure builds up in the dilated section and I get the gurgling and rumbling you describe as everything thing flows backwards. If I've eaten too much it fills my stomach and I'm sick, or with luck after a bit of gurgling and to-ing and fro-ing it works it's way past the stricture. Now I know this is what happens, I've learned to control it by being very careful with what and when I eat. In my case I eat a low residue (i.e. low fibre) diet, and I also graze, having several smaller meals a day. I've also learned what foods to avoid and what's safe.
Once you've had a stricture removed the balance of probability is that it will recur in much the same place - in my case I had the stricture removed in my early twenties, then again in my mid thirties and I'm about to have surgery again at the age of 46. In a way I consider myself lucky because the Crohn's has always been very localised, so having the surgery the last two times gave me instant relief for a few years, until things eventually started to deteriorate again.
Although the terminal ileum is the most common place to have Crohn's, you'll have seen by reading this forum that it effects different people in all kinds of different ways. I'm afraid you're probably find it takes some time to get "straight" answers from your consultant - it's not that he/she doesn't know what he/she's doing, it's just that we really are all different and also many of the symptoms are common with other complaints, such as IBS or allergies, for example. If you stick with it, though, you'll find out more and more about your specific conditions and become better and better and dealing with it through a combination of treatments and lifestyle changes.
I hope I'm not speaking out of turn here, but if I could offer one piece of advice it would be to learn some of the basic medical stuff like what the different parts of the digestive tract are, where they are in your body and what they do. That way you'll be able to use the limited time you get with your consultant to good effect and have a better understanding of what you're being told. Also, ask as many questions as you need, both to your consultant and here, however basic or embarrassing they may seem. If you want to remain anonymous use Google, it's usually fairly obvious what the "authoritative" sites are and what's just someone's opinion, and/or feel free to using the "private message" link on the forum if you think there's anything I can help with that you don't want to post on the forum.
Anyway, I've rambled on enough for now - off to hospital tomorrow for a blood transfusion in preparation for the surgery on Monday.
Hey.. Thanks for replying once again.. Katherine - i take take Pentasa 2g daily ive been onthis now since beginning of september? work went really well 2day, all the nerves disappeard within 10 minutes lol it was so busy i didnt have time to be scared of what 'may happen' lol I did speak to my boss (the pharamcist) he seems to think i need to change meds, he feels it might be able to get this under control with meds that are better suited to me, so again' can only see what they say wednesday.. Nice to know im not alone with the 'single' dilema, it used to be the endo that scared me from meeting some1, i had that for 2 years, now this!! Hard aswell cause i never feel up to going out ( well i was off sick for a long time too so couldnt really go out' not that i felt like it) but yeh its rubbish x
Mike - Thank you so much for explaining more to me, its a great help, and i will have a look at them leaflets by flowing that link, thanks.. I did do' as part of my pharmacy training' a whole module on bowels and bowel problems, i must dig it out and re-read it, it has alot about medicines used to treat the illnesses to, so that will help me as well. I totally agree with you about knowledge is power, i learnt so much about my endometriosis that whenever i had an appointment i was as clued up as the specialist, so i must get to that point with this.. Just seems there is a lot to learn :/ Im also going to dig out the 'diagnosis sheet' i was given after the inital dianostic colonoscopy, it may say what part i have the crohns, if not i will ask them wednesday. Tomorrow im going to sit down and write all the questions i want to ask on wednesday... I hope everything goes ok for you tomorrow, and even more so for the surgery on monday.. Best Wishes Dawn
Hi Mike ive just looked at the Colonoscopy Report again and under Diagnosis this is what it reads - Crohns Disease (All of the visulised Colon). So i was wondering if that means i have the crohns in my colon? and only my colon otherwise it would have said in other places too? I will ask the specialist tomorrow though.. Thanks Dawn
Hi, sorry for the slow reply - transfusion turned out to be an overnight job, still at least I know where I'm going on Monday. It sounds from the description like you've got Crohn's in your colon - it would be interesting to hear what the consultant said. If this is the case, I'm not really sure what the implications are, I'll see if I can dig out a link to some appropriate info and post it here. At the risk of putting a negative slant on things, it is possible you may have Crohn's elsewhere as well, have you had tests other than the colonoscopy and blood tests - e.g. barium meal or gastroscopy? I hope you got on OK, Mike.
Hi Mike & Katherine.. Sorry to hear your transfusion didnt go as expected, hope your feeling ok now.. I didnt have great news yesterday, feeling very upset today, my consultant listened to all the symptoms i described, she asked to examine me, afterwards she ssaid she needed to do a sigamoid oscopy' i thought this would be me coming back to the endoscopy suite and having the procedure done at a later date, but no she said she had to do it there and then, ouch!!! Afterwards she told me that unfortunatly it has spread from my colon and was now all over the part which comes from my colon down to the anus and she thinks its highly likely its elsewhere to, she said she felt sorry for me that in 2 months it had gotten progresivly worse, and asked how i gotten through these few weeks, i told her i did tell the GI nurses that i wasnt feeling well at all but they kept saying because my inflammatory markers werent raised they didnt think i was having a flare' she said some people are symptomatic rather than raised levels, so therefore i am symptomatic' i felt like saying 'well can u bloody tell the nurses that then please' Anyway i now have to have an MRI to see where else it is, shes changed my meds i have to up the pentasa to 2g twice daily, added in Budeneside, azaiathoprine (if the bloods she took last nite come back ok) and pentasa suppositories.. She did warn me together, all them may not make me feel very well but it will stop my symptoms quickly, shes advised me to say on reduced hours at work for now and im going back in january to see her.. Feel so upset, i spent all this year waiting for the endo op so i could get my life back and now i have this and am struggling so much with it, i fear i will lose my friends as i struggle to want to go out now let alone taking all that and how its gonna make me feel, feeling very much like 'why me' and 'i hate my life' right now maybe i'll feel better tomorow, i hope so, i know there are people who are much more worse off than me so i need to turn it around and think im lucky, but today im struggling x
"It's gonna be ok" If I'm honest is what I would love to hear as I am on my own, it seems to mean more coming from someone else, it does not have the same impact when I say it to myself or I've just stopped believing it..
If you can get through the endo you can get through this! Yes it is a bit of a mind field at the moment and probably hard to take on board, all that you have been told but you will get through this.... and so what if there are others worse off you are hurting and that does not make you any less than them, this condition/disease is nothing to be sniffed at.... if you pardon the pun! It sounds like you have a very good GI and they will be able to give you the right treatment and advice to get this under control...
Feel free to private message me or just vent off on here it's good medicine.....
On a different note I see you live in Dorset my folks live in Wareham, anywhere near you?
Hi Katherine.. Thanks for your words, it helps lots to know im not the only one who feels down & alone.. I had such a terrible night last night, i took the steriods at half 10 (am) by 7pm last night i felt like i was extremly high, i felt wide eyed, shakey with aldrenalin, like i could a ran a marathon, or cleaned the whole house in half four' when it came to sleep, well' ive had about 4 hours' i was pacing the house at 2am! i feel shattered, ive got work aswell today its the bloody steriods, arghhh i had this but even worse on prednisolone, hence why im on budeseniode now, thinking it wont happen, it has!! Dread this evening at work, the locum pharmacist will think im a zombie on drugs! Still at least the pharmacy might get a good clean, or i can serve a 100 customers in one go lol! Yes Wareham is quite close to me, about half hour drive away, its a lovely place.. Small world hey Dawn xx
Yeah steroids are fun NOT.... I don't get on with them but when things get really bad I've got no choice but to take them! The side effects should settle down but I would have a chat with your boss! When I'm on steroids I become Jeckel n Hyde, roller coaster of emotions and so aggressive, suffering with Depression does not help! Did say to my GI when they first put me on them that if they worked and I got better I could always get a job in a circus as the bearded lady.....
Keep cracking the jokes it helps with the sanity....
I'm going down to see my folks in the New Year, love where they live, it is picture post card.....
LOL!! Laughter is the best policy Yes Wareham is very pretty, and the surrounding areas, i feel very lucky to live where i live... Well im still feeling quite 'high' at nite, i told my boss and he suggested i tell them but its probably a case of having to put up with it as i need them :/ Am speaking with them 2mora so will tell them.. Looks like i may be joining ya at that circus ;p lol x
We grow boobs, so while you're at the circus I'll be doing panto - still, at least it's the right time of year.
Then there was the time when I had a tantrum in the office and went home in a huff because someone had left papers all over my desk. A bit embarassing, but fortunately folks understood and saw the funny side. I've never lived that one down though.
But the worse time was when I decided to paint all the kitchen furniture in the middle of the night, it seemed like a really good idea at the time, but Mrs. H was NOT pleased.
Good luck to you both, thanks for keeping me sane over the last few weeks, the countdown has finally ended, surgery tomorrow, so will be offline for a bit.
Hi mike..That did make me chuckle!! hahaha, thanks for making me laugh Wishing you the best of luck for tommorow.. Hope you have a speedy recovery & just in time to enjoy christmas hey.. Best Wishes Dawn
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that day and night i was exactly the same - every half hour a gush of dark red liquid that had started to turn frothy, dripping blood, pains etc. I suffered all the Sunday too, exactly the same, come the Monday, which was a bank holiday i couldn’t take anymore, i felt so weak, my family took me to OOH once again, this time the on duty GP decided to take action, thank goodness, my bloods showed high inflammation, dehydration etc, & id lost nearly half a stone in a week too. She decided to book me in for an urgent colonoscopy, i had to do bowel prep, why i don’t know as anything i ate (not that i was) was going straight through me, but 48hrs later i had the procedure done. On diagnosis afterwards they told me they suspected Crohns but they were awaiting the results of the 24 biopsy’s i had taken OUCH, i was given Pentasa to start and went back 10 days later to see them in clinic, where it was confirmed i did have Crohns (September 2011) i felt absolutely gutted.. Not only did i have endometriosis which in itself was destroying me, i now have this aswell. There is No connection between the two illnesses just unfortunate i now had another autoimmune disease to deal with. 
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